Variables

The Australian Stroke Clinical Registry collects a minimum data set of variables that provide information which is epidemiologically sound and credible for clinicians. The chosen variables provide the potential to learn from those hospitals who demonstrate the highest quality of care, in addition to providing clinicians with an early warning when quality of care deteriorates.

The Australian Stroke Clinical Registry collects and collates data on the type of care provided and the outcomes of this care. It is also necessary to collect some personally identifiable information so that a single individual is not counted on more than one occasion and so that individuals treated at more than one institution can be identified. Identifiable information must be collected to enable all people on the Registry to be contactable at the three months follow-up to assess the effect of their stroke on their quality of life.

In hospital

After you have agreed to participate, your treating specialist and/or nursing staff will complete the form that contains your details during your time in hospital.  This form includes the following information:

  • your name
  • date of birth
  • your ethnic status
  • your address
  • your telephone number
  • contact details of your next of kin or health contact person
  • Medicare number
  • hospital identification number
  • name of the hospital
  • type of stroke
  • medical treatment and care in hospital
  • complications, if any
  • living arrangements after discharge from hospital

 No other personal information is included.

 After discharge

As a participant of the Australian Stroke Clinical Registry, you will be contacted by telephone or mail at approximately 3-6 months after your stroke.  At this time the following information will be collected:

  • your name
  • date of birth
  • address
  • current health condition
  • living arrangements
  • support that you have received since leaving hospital
  • If after discharge you need more care, rehabilitation or are admitted back to hospital, information about your ongoing care will also be collected.