The Australian Stroke Clinical Registry collects a minimum data set of variables that provide information which is epidemiologically sound and credible for clinicians. The chosen variables provide the potential to learn from those hospitals who demonstrate the highest quality of care, in addition to providing clinicians with an early warning when quality of care deteriorates.
The Australian Stroke Clinical Registry collects and collates data on the type of care provided and the outcomes of this care. It is also necessary to collect some personally identifiable information so that a single individual is not counted on more than one occasion and so that individuals treated at more than one institution can be identified. Identifiable information must be collected to enable all people on the Registry to be contactable at the three months follow-up to assess the effect of their stroke on their quality of life.
After you have agreed to participate, your treating specialist and/or nursing staff will complete the form that contains your details during your time in hospital. This form includes the following information:
No other personal information is included.
As a participant of the Australian Stroke Clinical Registry, you will be contacted by telephone or mail at approximately 3-6 months after your stroke. At this time the following information will be collected: