All patients admitted to a participating hospital will be provided with written information explaining the purpose of the Australian Stroke Clinical Registry and the fact that personal identifying data will be provided to the registry for the purpose of quality improvement. This written information is contained within a Patient Information Sheet. Consent to record details of a stroke into the Australian Stroke Clinical Registry is then assumed by participating hospitals, unless a patient requests that their data is not included on the registry.
To “opt-out” means that a participant is permitted to have any of the information about them removed from the Australian Stroke Clinical Registry at anytime.
You can opt-out at anytime you choose by simply contacting the Australian Stroke Clinical Registry office on Freecall 1800 673 053. You, your relative or your authorised representative can contact the Australian Stroke Clinical Registry office at anytime and request that specific pieces of information about you be removed from the Registry (or that you wish to “ opt-out”).
This means you can remove some of your details, and therefore remain a ‘partial’ participant (for example, you may prefer to remove your date of birth or your address). If you choose not to participate at all you can remove all the information collected.
It is important that as many people as possible participate in the Australian Stroke Clinical Registry to help improve the treatment and care of stroke in Australia. Your decision on whether or not you wish to be involved in the Australian Stroke Clinical Registry does not affect your treatment in any way. However, we understand that people may not want their details recorded or may just change their mind.
If you would like to “ opt-out” or remove some or all of your details, please contact the AuSCR Office